OUR MEETINGS

We meet once a week, every Thursday,10.30am – 1pm  at the Ecko Club, Thornford Gardens, Southend, Essex SS2 6PU.

You’ll receive a warm and friendly welcome and benefit from a loving, supportive environment. The meetings include:

• Tea and cake • Friendly chat with like-minded people •
• Exercise and relaxation sessions (only if you want to take part!) •
• Updates on the very latest research •

If you’re unsure, please feel free to get in touch with David or Pat, who will be able let you know a little more.

WHAT IS HUNTINGTON’S DISEASE?

Huntington’s disease, which is often called HD, is an hereditary disorder of the central nervous system.

It used to be known as Huntington’s Chorea or HC.

Huntington’s disease usually develops in adulthood and can cause a very wide range of symptoms.

The disease affects both men and women.

If you’d like to know more please visit the HDA’s website for a full and detailed explanation of Huntington’s Disease.

THE HDA WEBSITE

UPCOMING EVENTS

PREPOSTEROUS STORIES NIGHT
Postponed – new date to be confirmed

WILD WOODS DAY
Postponed – new date to be confirmed

PAPERMILL LOCKE
Postponed – new date to be confirmed

USEFUL LINKS

Here’s a few links that will take you to some informative and interesting websites and videos related to Huntington’s Disease.

CLICK HERE
CARING FOR GENERATIONS
A short but informative film about Huntington’s Disease. Some viewers may find some of the scenes in this video upsetting.
CLICK HERE
THE HDYO WEBSITE
A fabulous website, aimed at young people and their relationship with Huntington’s Disease.
CLICK HERE
H.D. BUZZ
This is a website where scientists explain, in everyday language, the latest news about HD research.
CLICK HERE
CHARLES SABINE
The fascinating story of Charles Sabine, friend of the Group, and his campaign to bring HD out of the shadows.
CLICK HERE
SPEECH BY ED WILD
Dr. Ed Wild speaking at the HDAI conference in Dublin, Ireland March 2017.
CLICK HERE
MEGAN AND BEN
A short film by Anna Lukala about Megan and Ben, to raise awareness and explore what it’s like to live with HD. 
CLICK HERE
UCLH
A short film by Anna Lukala, to raise awareness and explore what it’s like to live with HD. 
CLICK HERE
GARY
A short film by Anna Lukala about Gary, to raise awareness and explore what it’s like to live with HD. 

KIM’S FRIENDS FACEBOOK GROUP

This is a SECRET FACEBOOK GROUP designed to offer Peer Support for anyone who has undergone a predictive test for Huntington’s Disease and received a negative test result. The Group is named after a young woman who had a negative test result but wanted more support than was available at the time.

It allows you to communicate openly about what it was like for you having to go through predictive testing for HD. It is moderated by two Specialist HD Advisers who can answer questions and ensure the safety of its members.

If you’d like to join, email either of the Moderators:
HELEN JAMES – helenjames@hda.org.uk
DIANA KING – dianaking@hda.org.uk

Helen and Diana will ask that you provide them with just a little bit of a background to your story and journey so far. They will then forward you a link that will enable you to join the secret Facebook page.

If you’d like to get in touch with us here at the Southend branch of the HDA, please fill out the form below and we’ll get back to you very soon. Alternatively you can call us  anytime – Pat Nelson 07954 657 603 or David McDonagh 01702 304 698.

And never forget – when we’re back up and running after the Covid situation – you’re more than welcome to just pop along from 10.30am on a Thursday and say hello!